September is PCOS Awareness Month, and I am 1 in 10

September is PCOS awareness month! You all have seen me write about PCOS before: Long story short, a dear bloggy friend of mine told me I needed to be checked for it after she heard about some of my ailments, I finally got checked, and I was a classic case. PCOS stands for Polycystic Ovarian Syndrome, it affects 1 in 10 women worldwide, and is the most common endocrine disorder in women. Although PCOS has ovaries in its namesake, PCOS is largely a hormonal issue, and as all you all know, hormones are microscopic things that make a huge deal in how your body runs and functions.

I had heard about PCOS in passing, but never heard enough about it to consider it would be a large reason for the many health challenges I was encountering. Since high school, I’ve lost handfuls of hair every time I shower, and sure enough, visited a doctor about it twice. It was chalked up to stress and I was on my way. (I still lose a lot of hair, but have now just accepted it as I still have plenty, thankfully.) I also visited the doctor at least twice a year with complaints of impossible weight loss, and several times, I was told to just work harder, no doubt the doctor assuming that my tales of healthy eating and exercise were just lies (and twice, I was prescribed prescription weight loss pills, which I did not choose to take). I also had telltale signs of insulin resistance; feeling panicky and shaky if I didn’t regularly eat, having severe headaches when I didn’t eat enough carby stuff, and sometimes got panic attacks that felt like surges of electricity running through my body. The menstrual side effects were mostly masked for me as I had been on birth control for many years to control difficult cycles (also a large indicator of PCOS). What makes me angry about all of these signs is that they had all been presented to doctors over the years who never thought to piece them together, because as my endocrinologist finally pointed out, I’m a classic case and likely have been for years.  Click here to go read more of the symptoms. I’m lucky that I haven’t experienced all of these, but there are also some weird PCOS symptoms that are not included on this list that I’ve experienced like mental fogginess, “carb coma”, chin acne only (a hormonal spot), and super sensitive skin. (What makes this syndrome even trickier to diagnose? Many people have completely different symptoms — for example, while 50% of women with PCOS are obese, some are not overweight at all. Some women with PCOS also don’t even have cystic ovaries, yet their hormones match the profile of being PCOS-consistent. Confusing, right?!)

How did my PCOS get discovered, then? In 2012, I had had enough with the BS of trying to lose weight. I’d been blogging on the DCD for three years, and had started a 3x weekly morning boot camp. I was busting my ass in hopes of dropping some weight for one of my bucket list trips to Thailand. Instead, I gained weight. About six months prior, I had stopped taking my birth control and allergy medication in hopes that maybe some of my earlier weight gain was from medication. Without the assistance of hormones (birth control is a common treatment for PCOS), my symptoms intensified, and I demanded my general care doctor do an ultrasound of my ovaries. Sure enough, the scan and blood work revealed several small cysts, in addition to high androgen levels, both tell tale signs of PCOS. Since my diagnosis about a year and a half ago, I’ve lost 22 pounds, largely thanks to the great care I’m receiving from my endocrinologist, who placed me on 1,000 mg of Metformin, a Diabetes drug that can help control insulin and imbalanced hormones. He also does regular blood work, and we did some adjusting to my thyroid, which likes to go back and forth between normal and too low. In the past two months, all of my liver and thyroid levels have become balanced, which means my skin has cleared up, I have more energy, and I’m slowly but surely losing weight when I make very dedicated efforts. This was impossible before my diagnosis and treatment, and while I will have to have my blood work monitored every 3-5 months to adjust medications, for the first time in awhile, I have hope when it comes to losing weight. There is no cure for PCOS, but with weight loss and medication, many of the symptoms can be reduced.

So why am I writing about all of these very personal things on a very public blog? Because we all have a right to know what’s going on with our body. If this is the most common endocrine disorder in women, and I had all the symptoms for over TEN YEARS and was never told about it until a fellow ‘cyster’ suggested I get checked, I want more people to know about it. Sure, PCOS is a “tame” problem to have, in comparison to other medical concerns. But PCOS can be the launching pad for many other debilitating illnesses: ovarian cancer, uterine cancer, cervical cancer, diabetes, heart disease, and severe anxiety and depression. If just one woman goes to the doctor because she has any of the following symptoms, this blog has done its job. When you have an invisible illness, which means one that can’t usually be physically seen, like PCOS, Crohn’s disease (which my best friend suffers from, or Lupus (another dear friend of mine suffers from this), uneducated people sometimes minimize its effects. I’ve even had people remark that I should stop using PCOS as an excuse for not losing weight. This is not only inaccurate, it’s insensitive and hurtful when you’re experiencing the very real complications of said “fake illness”. I can lose weight with PCOS, just as I can live a healthy and happy life. However, the key to this is treatment, and that treatment couldn’t have been discovered had it not been for one friend courageously telling me to go get checked. Like any other medical symptom, if you genuinely feel that something isn’t right, you need to look into it, and if nobody listens, keep going until you find someone willing to fully investigate what’s going on. You are worth the hassle. You are worth the time. You are worth the knowledge — because you might be 1 in 10.

I wear teal for me.

I wear teal for me.

Alyssa’s Weight Watchers Weigh In: Week 1

Tuesday was a great day. Even though I had nervous anticipation all morning before I stepped on the scale on my lunch break, I felt confident with my choices from the week before. I drank a lot of water, I exercised nearly every day, I snacked on Persian cucumbers instead of chips, and I minded my portions. I knew even if for some reason the scale didn’t reflect my good work, possibly the next week would, because “you always get the week you deserve eventually.”

I kicked off my flip flops, climbed on the scale, sucked in my breath, and wished for good news. “You’re down this week!” the leader said, and when she showed me the number, I actually let out a little hoot of joy. Here’s what made me so happy:

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YAY! 4.4 pounds is a big, big loss. I was also on the tail-end of completing the Mamavation Two-Week Bootcamp, so being forced to do burpees and arm curls and cardio helped, too. I’m so relieved that the first week of “Simple Start” worked. Basically, it’s a plan focused on lean proteins and dairys, whole grains, vegetables and limited fats. It’s pretty much a “Don’t Eat Crap” manifesto, though you can choose one crap item (junk food) per night, with suggestions being things like a Weight Watchers ice cream, a glass of wine, etc. My crap items were Weight Watchers Dulce de Leche ice cream bars (they’re okay. Kinda fake. Not my fav), oatmeal chocolate chip cookies I made, and one night, two squares of white Irish cheddar cheese. Deeeeeelish. This week, I need to be aggressive about staying “good” — sometimes when I have a strong success like this, I tend to think “Oh! I did so good last week that I can cheat a little bit and I’ll still lose weight!” Nope, not so much. Don’t wanna get over confident over here. However, I did realize this week this is the first time I’m trying a “real” weight-loss plan again now that I know what’s up my wacky body, and that’s exciting.
I was also thrilled this week to hear from three different people that it looked like I was losing weight. Those comments are so encouraging to me, because I see myself all day, every day. Hearing it from someone else is sometimes exactly what you need to remember why you’re choosing the salad over the pizza.

So that’s my awesome news for the week! Can’t wait to share with you next week about my next weigh in, and I can only hope it will be as good as this one, but I’ll be happy with any sort of loss. 🙂  I’ll be back soon to tell you about my newest fitness gadget, the Fitbit Force!

 

Banned Words: I’ll Start Tomorrow

It starts out innocently enough. In my case, a movie. The husband and I had been wanting to see Gravity for a few weeks, but overlapping schedules prevented us from the two-hour luxury. We finally made it yesterday night. As we planned our day, I thought about what we’d make for dinner. I had previously said on Saturday that I’d “start low-carb tomorrow.” I’ve been kind of “off” the past few days in terms of exercise, overwhelmed by life and feeling lazy. (House-hunting and being a business owner will do that to ya.) I knew I needed a fresh start. I decided that I’d have movie theater popcorn as my dinner. Yes, yes, that sounded lovely. There’s nothing like hot, buttered popcorn and a suspenseful flick to end the week. Wait! A little voice popped up in my head. “Popcorn isn’t low carb.”

“Oh, who cares,” the other voice in my head reasoned. “If you don’t eat dinner, and have popcorn instead, it cancels itself out. Sure, it’s high in calories, but you ate light today.”

The other voice responds, “Movie popcorn is the worst thing you could eat. The salt alone will make you bloat ten pounds. Add the butter oil and you’re asking for it. I thought you wanted to lose weight. Don’t do it. Losing weight means saying NO. It means discomfort. It means sacrifice. How bad do you want this? You have to make the change.”

The other voice, growing panicked, grasps for straws. “You deserve it! You’ve had a hard week, with lots of important, adult decisions. Movie popcorn is your FAVORITE. AND, you’ve eaten low-carb all day. You’ve already done so well! You can have a little splurge.”

The other voice, sounding sad, tells you to stop and think. “Remember trying on jeans at TJ Maxx? How the cold, metal button on almost every pair gouged into your tummy, made you cringe? How you’re avoiding the scale, knowing that your body isn’t “normal”, and that your small mistakes with food and exercise WILL ALWAYS show? Your hormones are wacky. It’s not just bad habits that make you gain weight, but it doesn’t help. Your body is actively going rogue. You have to work hard to prevent it from defeating you. It is what it is. Popcorn won’t help, on any level. You know that, Alyssa.”

The other voice, feeling defensive now, says “Just start tomorrow, Alyssa. You deserve this. It will make you feel good.”

The other voice says, firmly now, “No. I’m not starting tomorrow. I’m starting today.”

I’ve learned something about myself the past few years. I can’t just decide one day to lose weight and just do it. I have to decide almost every minute of every day. At least once an hour. I need to decide to drink water, to get moving, to not eat bread, or cookies, or candy. To refuse the movie popcorn. I need to recommit. I’m fiercely loyal to the things I love. Clearly, weight loss is not a thing I love.

So I saw Gravity. And for a riveting two hours, I sat, consumed with emotion and angst, completely lost in the story. The movie was phenomenal, and my husband and I left shaky and tense, rocked by the amazing visual effects and captivating storyline. We’re still talking about the movie today. I didn’t even miss the popcorn. Sure, the smell always seduces me when I walk in, but I didn’t need the crunch, the salt, the butter, the motions, the kernels in my teeth. I didn’t need popcorn. I didn’t need snacks. I didn’t need to start tomorrow. I needed to start today.

5 Weeks of Boot Camp

Tomorrow morning is the first Monday in five weeks that I won’t force myself out of bed at 6:45 AM, hastily throw on some workout clothes, and rush to the park to sweat. I finished my five week Groupon and I’m happy to report that my boot camp was nothing but a positive experience, as it taught me several things:

  • While I am certainly not a morning person, getting a great work out before the day begins is awesome. It was done for the day and I went to work feeling nice and awake and stretched out and limber.
  • I have lazy tendencies, and need to push myself to work harder when it comes to fitness. My bootcamp instructor was great about encouraging me to do more, and it worked. Sometimes a gentle nudge is all I need.
  • Five weeks seems short, but it made A LOT of difference in my fitness regimen. How much? Let’s see!

On the first day of the class, we did baseline fitness testing where for one full minute, we counted the number of crunches, squats, sprints and “six inches” that we could do. Six Inches means you hold your feet and legs off the floor, six inches above the ground, using your core to support you.

Here’s my baseline fitness test next to my scores after five weeks:

Screen Shot 2013-04-28 at 9.40.07 PMI was most proud of my improvements on plank. For some reason, the plank is always the fitness move that eludes me, where I try and try to hoist my body up, teetering on my elbows like a hot dog held up by toothpicks. I’ve finally mastered it, and at the beginning of the five weeks, I thought I was going to die after 15 seconds – and now I can actually hold it up to a minute and 30 seconds. AWESOME!

As you can see above, I improved in every category except for sprints. I am tryiiiiing so hard to like running, but I think I finally hit the nail on the head for why it’s not uber enjoyable for me. It’s HARD to move this body, with an extra 70 pounds. I am agile, flexible and strong, but I am not FAST – and that’s so much of what running seems to be. However, I recognize that it’s an amazing cardio element, so I’m going to try to keep it up.

All in all, after five weeks of bootcamp, I lost 9 inches over all and greatly improved my fitness. I’m already debating signing up again because it felt so much more rewarding for me than my gym. As much as I love Zumba and boxing, this fitness regimen really got me movin’ and combined cardio and strength, and I loved being outside in the morning, watching the squirrels find their breakfast, seeing the sun rising up over the smoggy skies of Los Angeles.

As far as weight, I haven’t gotten on the scale since last week’s kerfuffle, but I’ll be back on it soon. When I’m done with school, I have an appointment with my doctor, just to double check that hormonally, everything is right. Sometimes you just have a feeling something’s wrong, and I want to just double check. In reflecting back, losing weight has been about 94% impossible for me the past year, so I just need to confirm that it’s all good in the hood and it’s likely behavior (food) and not physiology (hormones) that’s making this so challenging.

Anyhoo! So that was bootcamp! I surprisingly loved it.

I hope you have a fantastic Monday – I’ll be back tomorrow!